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Directory : Health : Conditions and Diseases : Neurological Disorders : Muscle Diseases : Muscular Dystrophies :

Description



See Also :


  • A Guide for Parents - This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
  • Ask NOAH About: Muscular Dystrophy - The basics, genetics, diagnosis, care and treatment, specific types and information resources. From NOAH (New York Online Access to Health).
  • Becker Muscular Dystrophy Information Exchange - This web site serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
  • DMD Forum - An International forum providing support and resources for families and individuals facing the challenge of Duchenne Muscular Dystrophy.
  • DMD Information - Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
  • DMD Options - Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy.
  • DMD Pioneers Yahoo Support Group - A Yahoo support group, mailing list, and message archive for teens and adults with Duchenne Muscular Dystrophy. Family, caregivers, and friends of those affected by DMD are also encouraged to participate.
  • Dr. John R. Bach - The DMD/SMA/ALS Doc - This site provides information about Non-Invasive Ventilation (NIV) and pulmonary care. Utilizing NIV as an alternative to a tracheostomy decreases hospitalization and increases quality of life.
  • Duchennes - Provides links to medical and non-medical organizations and people with Duchennes problems.
  • FSH Friends - This site is a resource for individuals and families interested in Facioscapulohumeral Muscular Dystrophy.
  • General Practice Notebook - Duchenne muscular dystrophy - Clinically-oriented information.
  • HealtHub - A brief definition of muscular dystrophy, followed by links to overviews, full text articles, research projects and organizations.
  • Living For Today: A Guide for Parents of Boys with Duchenne Muscular Dystrophy - Living For Today is a growing reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
  • MDA Ride For Life - Pennsylvania Ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, May 3-4, 2003.
  • Muscular Dystrophy - A short information sheet on MD compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
  • Muscular Dystrophy Campaign - Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
  • Muscular Dystrophy Community - Message boards and chat dedicated to sharing information, offering support, and coping strategies to better cope with this disease. Community moderated by volunteers.
  • National Registry of Myotonic Dystrophy and FSHD Patients and Family Members - Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
  • Search our Wiki for Diseases Muscular Dystrophies - Find more information about this subject by clicking here

Category Editor
brsteph


Last update : 2003-04-05 05:53:24

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